Rheum Update: LAWs, Eyes, and NYC
|Ahh..this is the life!|
First, let's start with the physical therapy. I ended that probably
about a month ago now. My physical therapist gave me lots of exercises that I can do at home to help mobilizing and strengthen my wrist joints. In my previous update, I mentioned how I was able to gain 20 degrees or so in my range of motion (mostly flexion and extension -- the lateral movement is still difficult for me). That's about as good as it got. Judging from my x-rays, my guess is that I can only bend the joints so far until one bone gets stuck on another. The good news is that with the exercises I am able to help my wrists regain a little functionality and hopefully will continue to build strength. I have therapy putty, rubber bands to help with strength and now the knowledge of how to slowly stretch my wrist joints.
|Yep, that's my eye.|
Daily Dose Should Not Exceed: 6.5mg of hydroxychloroqine per kg of body weight
Using that calculation, I should not be exceeding 345mg/day. But I take 400mg/day. I asked the ophthalmologist if I should reduce my dose, and he told me that that's really a decision for my rheumatologist (the prescribing doctor). However, he said that he would send a letter to both my rheumatologist and my PCP, and that I should follow up with my rheumatologist if I do not hear anything from them. So, I will probably give them a call if I don't hear from them next week!
Otherwise, I have actually been doing really well rheumatoid-wise! I had the chance to meet up with some fellow RA patients a few weeks ago in New York City at the first RA Blogger Summit put together by Pfizer, Inc. Pfizer invited a group of RA patients out to their headquarters for a unique opportunity to provide some feedback on their new campaign (RethinkRA.com) via a focus group style roundtable discussion. You can read about the event on my friend Shannon's blog: http://rheumatoidpatient.blogspot.com/2013/06/rheumatoid-arthritis-blogger-summit-and.html
|Here's the group of patients Pfizer flew out for the meeting,|
along with Seamus Mullen, award-winning chef who is also an RA patient
& is working with Pfizer, doing cooking demonstrations across
the country: http://cooking.rethinkra.com
Hi there! My name is Dana and I live in West Michigan with my husband, Tom and our dog Happy Gilmore. I created this space as a place to share the things I learn along this journey I call life. I work in marketing and I'm a sort of Jane of All Trades, interested in all things nature, gardening, cooking, exploring and learning new things. This blog is a conglomeration of my interests, hobbies, life and life lessons. Thanks for stopping by!